Running Against the Odds

In 2003, I was diagnosed with Central Diabetes Insipidus.  The path to getting diagnosed was very long and  painful experience. In the Summer of 2003, I was noticing an increase in thirst and I was very very tired. I had always been a water drinker but never really noticed how much I was drinking until I was filling up gallon water bottles before going to bed and then realizing in the morning that they were empty. I had a problem….and so begun the long process of being diagnosed.

The first doctor I went to, I was told I had “allergies” SERIOUSLY, I don’t think allergies could make me this thirsty. On another visit, she told me that I had a psychological disorder that made me have the “compulsion” to drink water. She told me that if I continued drinking the way I was, I could end up with water intoxication. I think I was limited to about 1 or 2 liters a day when at the time I was drinking some where between 3-4 gallons a day!! This was extremely difficult for me and refused to listen to this doctor that obviously did NOT know what she was talking about!!! OMG, seriously horrible experience!!!

After a few months of going back and forth with this crack pot of a doctor, I was finally referred to an endocrinologist. When I first met my wonderful Dr for the first time, I felt like I was in good hands. She ordered an MRI and a water deprivation test. For the water deprivation test I was told to not drink water for 8 hours (at home) and then go to a lab to have my blood drawn. It was pure HELL to not drink water for 8 hours. I lost a total of 6 lbs during that time. I drove to the lab first thing in the morning with a huge bottle of water to drink as soon as the test was over. Next was the MRI. It was scary to think about all the possibilities of what could be wrong!!

When I met with my endocrinologist after the tests, I was scared about what she would tell me was wrong. The thought of being on medication for the rest of my life scared me!! The thought of having a “disease” scared me. Everything scared me!! But, much to my surprise, I was diagnosed with idiopathic Central Diabetes Insipidus. My pituitary gland was “flattened” due to some brain fluid that had leaked on it. The only hormone that was affected was the antidiuretic hormone (ADH). I was then put on Ddavp and have been on it ever since.